MONROE, Neb. (AP) — Two Platte County parents are determined to help their daughter really live in what little time she may have left.

Twenty-five-year-old Paige Wiese and her husband, 28-year-old Shawn Wiese, says the bucket list they’ve created for their 15-month-old daughter, Alexus, is all about being together as a family. The Monroe couple also have a son, Weston, who was born four years ago.

Alexus was diagnosed with a rare disease called cystic encephalomalacia shortly after her birth in April 2014. It’s caused by pockets of fluid and cysts that grow throughout the brain, causing the brain to stop growing. The earlier it can be diagnosed usually means the shorter the life span.

The Wieses lost a 14-month-old girl, Joselyn, to the disease in 2001.